Our news

News from the association: projects, meetings, awareness campaigns and behind the scenes at the n’Cie.

Latest news

The website and the n’Cie Passport are launched

The association’s website opens its doors: pages on EDS, gastroparesis and related conditions, a directory of professionals, practical guides and summarised studies. The n’Cie Passport has launched: a stamp at every meet-up.

Discover the Passport

Latest news

Charity Christmas

Every weekend in December, volunteer members sell crêpes and waffles on a pay-what-you-like basis to raise money for the association.

Watch the video

Two official partners

Justice Endométriose and Les lettres d’un invisible become official partners of the n’Cie.

See our partners

The association becomes the n’Cie

The n’Cie, for “and Company”: because we move forward together, beyond EDS.

Our story

The association is born

The association is founded under the name “SED & Gastroparésie — Du Sud au Nord”.

Our story

Highlights of the year

Awareness days and months for our conditions: so many opportunities to talk about them around you.

  1. End of February Rare Disease Day The last day of February
  2. March Endometriosis Awareness Month Our endometriosis page
  3. 2 April World Autism Awareness Day Our autism and ADHD page
  4. May EDS and HSD Awareness Month The zebra is its symbol · EDS
  5. August Gastroparesis Awareness Month Gastroparesis
  6. October Dysautonomia and ADHD Awareness Month POTS and dysautonomia

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