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Official partner
Justice Endométriose
French association dedicated to endometriosis and patients’ rights: information, free social and legal support, and campaigning for recognition of the disease.
Our partners
The partners and initiatives that support the association.
Our official partners
Official partner
Official partner
Les lettres d’un invisible
Words for invisible ills. One letter at a time, this project gives a voice to people living with an invisible illness and supports them: “writing to exist, sharing to heal, together to be seen”.
Official partner
Corps battants, corps vivants
An art project about chronic and invisible illnesses (gastroparesis, EDS, MCAS, endometriosis…), exhibited in particular at a university hospital. It was created by Anne Charlotte, the association’s representative for the North.
Official partner
Barbara Vigan
Certified reflexologist in Marseille (8th district), specialising in stress management and well-being: foot, hand and head reflexology, seated amma shiatsu and Bach flower remedies.
Our partner organisations and associations
Sed’Occ France
Ehlers-Danlos Syndrome Occitanie association: it raises awareness among the public and health professionals, runs support groups for patients and carers, and builds a care pathway with the region’s hospitals.
Handicap+
Association supporting people with visible or invisible disabilities throughout France: a legal service open to all, support groups and a community radio.
Osmotility
Swiss association for rare digestive motility disorders (gastroparesis, CIPO), with information on enteral and parenteral nutrition.
Association POIC
Association dedicated to chronic intestinal pseudo-obstruction (CIPO): help for patients and their families, emotional support, an annual family weekend and research funding.
Parlons Migraines
Information, personal stories and advice for living with severe migraine. A platform created by the pharmaceutical company Lundbeck France.
Vivre avec le syndrome de POTS (Living with POTS)
Association dedicated to postural orthostatic tachycardia syndrome: awareness, information, video meet-ups and phone support.
Handicap aux 8000 visages
Virginie Szpiro created a pictogram to make invisible disabilities visible. She campaigns to have it added to signage: priority checkouts, transport, public places, parking spaces…
La Vie En Fibromyalgie
Created by Ludivine, an expert patient, this community supports people living with fibromyalgia or other chronic illnesses: awareness, help with French administrative procedures (MDPH, RQTH, AAH, ALD…) and everyday tips.
Peachy & Magic
A charity working for children’s well-being and supporting families: solidarity initiatives, help with some health costs, and support for older people.
PARR PT
Physiotherapy specialising in EDS, POTS, brain injuries and chronic illness. The team also runs free French-language webinars for health professionals.
Pharmacie du Rocher
A partner pharmacy of the association.
They support us
Health professionals who support the association.
Obstetrician-gynaecologist
Dr Mikaël Krief
Marseille and Vitrolles.
Osteopath
Eucelia Granet
Villeneuve-lès-Béziers.
Osteopath
Natacha Souternon
Vitrolles.
Orthotist
Fabienne Desole Paoli
Adéquat Orthopédie, Vitrolles.
Reflexologist
Barbara Vigan
Marseille (8th district).
Doctors, pharmacists, allied health professionals
Contact us
Are you a healthcare professional?
Documentation, awareness posters, partnerships: help your patients find support by spreading the word about the association.