SED Gastroparésie N’Cie Non-profit association

Behind every diagnosis,a story

Stories shared on Instagram: people from the community tell what they go through, so that it is finally seen.

Experiences that matter

The testimonies remain hosted on Instagram. This page brings them together, to highlight those who chose to tell their story.

Discover more testimonials on Instagram

They share their daily lives

People who share their experience, tips and knowledge on Instagram.

Account to follow Instagram

Catherine

Extra-Ordinaires

Hypermobile EDS, HSD and invisible disability. She digs into studies, treatments and rights to explain them simply, and shares her own experience.

See Catherine’s account on Instagram
Account to follow Instagram

Ailesa

Cassis

Long Covid, MCAS, hypermobile EDS, POTS, gastroparesis… She raises awareness and informs by talking about her daily life.

See Ailesa’s account on Instagram
Account to follow Instagram

Caitlin

The HEDS Index

Hypermobile EDS, POTS, MCAS, endometriosis, narcolepsy… She shares her medical journey, her symptoms and research.

See Caitlin’s account on Instagram
Would you like to share your story?

Every story can help someone feel less alone

Over time, the association may share more testimonies, with the consent of the people involved: as videos or photos on Instagram, or as text published directly on this site, readable without an Instagram account. You can share your story under your first name or anonymously.

Share my story

Or message us on Instagram ↗

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