The autism spectrum and ADHD

Two neurodevelopmental disorders, different but often linked, present from childhood and throughout life, with needs that vary greatly from person to person.

Two neurodevelopmental disorders

In neurodevelopmental disorders, the brain develops and works in a particular way from childhood. Autism spectrum disorder and ADHD are among them. They are distinct, but the same person can have both.

Autism spectrum disorder (ASD) shows in two main areas: communication and social interaction, and repetitive or restricted behaviours, interests or activities, often with sensory differences. It affects about one person in a hundred.

Attention deficit hyperactivity disorder (ADHD) combines attention difficulties, and sometimes restlessness and impulsivity. It affects about 5% of children and often persists into adulthood.

Characteristics unique to each person

We speak of a “spectrum” because situations vary widely: some autistic people live independently, others need a lot of daily support. Here are common characteristics, more or less marked.

Social communication

Difficulty picking up on hints, facial expressions or unwritten social rules.

Need for predictability

Routines are reassuring, and unexpected changes can cause anxiety.

Special interests

Intense interests, often a source of expertise and enjoyment.

Sensory perception

Very high or, on the contrary, low sensitivity to noise, light, textures, smells or touch.

Fatigue and overload

Constantly adapting is tiring. Overload can lead to a need to withdraw or to a meltdown.

Masking

Many people, especially girls and women, mask their difficulties, which often delays diagnosis.

Attention, restlessness, impulsivity

ADHD can take a mainly inattentive form, a mainly hyperactive-impulsive form, or a combined form. The difficulties have been present since childhood and show up in several areas of life: school, work, home, relationships.

Inattention

Difficulty staying focused, forgetfulness, lost objects, tasks started but not finished.

Hyperactivity

A need to move, difficulty sitting still; in adults, more of an inner restlessness.

Impulsivity

Acting or speaking before thinking, difficulty waiting your turn.

Emotions

Intense emotions that are hard to regulate, strong sensitivity to criticism.

Organisation

Managing time, planning and getting organised takes a lot of effort and is tiring.

Often overlooked

Girls and women, who are often less restless, are frequently diagnosed late, sometimes in adulthood.

A diagnosis possible at any age

In children, the first signs can be spotted by parents, school or the doctor. The doctor can refer to a specialist assessment, in France in particular through the coordination and referral platforms for neurodevelopmental disorders.

For autism in adults, diagnosis often comes late. It involves a psychiatrist or a team trained in autism; Autism Resource Centres (CRA) step in for complex situations.

For ADHD, diagnosis is made by a trained doctor (paediatrician, child psychiatrist, neurologist or psychiatrist), based on interviews, questionnaires and history since childhood, checking that the difficulties appear in several settings.

In both cases, other causes must be ruled out: sleep disorders, anxiety, hearing or vision problems, but also chronic fatigue and pain.

Adapting the environment, supporting independence

Support is built with the person and their loved ones, according to their needs, strengths and wishes.

Everyday adjustments

Visual cues, an adapted sensory environment, breaks, organisation tools: small adjustments often make a big difference.

Professionals

Speech therapy, psychomotor therapy, occupational therapy, educational or psychological support, depending on needs.

Understanding and getting organised

For ADHD: information about the disorder (psychoeducation), parenting programmes and cognitive behavioural therapies.

Medication

For ADHD, treatment can be offered and monitored by a specialist doctor, alongside other support. If you also have POTS or a heart condition, tell your doctor: some treatments can speed up the heart. There is no medicine that treats autism itself.

School and work

The MDPH can grant support: a classroom assistant, exam adjustments, recognition as a disabled worker…

Rights and procedures

Overall health

Sleep disorders, anxiety and digestive problems are common in autistic people or people with ADHD and deserve proper care.

Be careful: beware of methods that promise to “cure” autism or ADHD. The French National Authority for Health (HAS) guidelines describe the approaches that are validated.

EDS, hypermobility and neurodevelopment

Several studies, including a large Swedish population-wide study (2016), have observed that autism and ADHD are more common in people with Ehlers-Danlos syndrome or hypermobility, and in their relatives.

The reasons for this link are still being studied. Professionals following someone with EDS should therefore also think about these characteristics, and vice versa. Fatigue, pain or dysautonomia can also affect concentration: this must be taken into account before concluding it is ADHD.

Are you affected by autism or ADHD?

SED Gastroparésie N’Cie enables the people concerned, relatives and carers to talk to each other, share their experiences and not be alone.

Suggested searches