Generalised
Hypermobility of many joints (positive Beighton score), with musculoskeletal symptoms.
Your hypermobility causes you pain, but you don’t meet all the criteria for hypermobile EDS? You may have a hypermobility spectrum disorder. In French it is called TSH; in English, HSD (Hypermobility Spectrum Disorders). On this site we use HSD, the most widely used acronym. Your symptoms are just as real.
Hypermobility spectrum disorders were described in 2017, at the same time as the international classification of EDS. They concern people whose joint hypermobility causes symptoms (pain, instability, repeated sprains or dislocations…), without their meeting all the criteria for hypermobile EDS or for another connective tissue disorder.
The diagnosis is clinical: there is no genetic test. It is made by a doctor, after ruling out other causes.
They differ according to the joints involved.
Hypermobility of many joints (positive Beighton score), with musculoskeletal symptoms.
Hypermobility mainly limited to the hands and feet.
Hypermobility of a single joint or a single group of joints.
Hypermobility present in the past, which may no longer show today (flexibility decreases with age).
The doctor relies on three criteria, defined in 2017 for hypermobile EDS.
Measured with the Beighton score, out of 9 points. The threshold depends on age: at least 6 in children, 5 in adults up to 50, 4 after 50.
Skin features, family history, chronic joint pain or instability.
Other connective tissue disorders and other possible causes must be ruled out.
If hypermobility causes symptoms but the three criteria are not all met, it is called a hypermobility spectrum disorder (HSD).
Adapted rehabilitation, joint supports, managing pain and fatigue, everyday adjustments: the guidance is the same as for hypermobile EDS.
If there are also associated conditions (digestive problems, dysautonomia, fatigue…), they are looked for and treated in the same way.
The content of this page is provided for information only. It does not replace a consultation, a diagnosis or personalised advice from a healthcare professional.
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