Practical guides

Note your symptoms, how they change and what affects them, so they are easier to discuss at appointments.

Symptoms, treatments, documents, questions to ask: gather everything before the appointment.

Early signs, care pathway, school (PAI, PPS, exams) and support for parents.

Pain, fatigue, meals, sleep, school: one sheet per week to print to follow a child or teen.

For children: every evening, circle the weather of your day to show how you feel.